Deck 9: Ethical, Legal, Social Implications of the Human Genome Project

ملء الشاشة (f)
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سؤال
A parent says,"I read that some states keep the blood sample from newborn screening and use it for other studies.Is this correct?" How should the nurse respond?

A)"That is no longer the case."
B)"I can't believe that would occur."
C)"That has happened in some states."
D)"Why would you find that disturbing?"
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سؤال
A client is aware that her pregnancy is complicated because the fetus has genetic abnormalities.The nurse would avoid which statement when discussing preparation for the baby's birth?

A)"You may wish to consider delivering your baby in a high-risk perinatal unit."
B)"Babies have been born for millions of years and we will get yours here safely,too."
C)"Let's talk about your plans for parenting your baby."
D)"Are you prepared for your baby to be transferred to a higher-level facility if necessary?"
سؤال
Before obtaining a client's signature on an informed consent form,the nurse would evaluate the client's level of understanding about which information?

A)The projected time it will take to receive testing results
B)The risks associated with having the testing performed
C)The type of test or procedure being done
D)The risks associated with not having the test done
E)The estimated cost of the procedure
سؤال
A 5-year-old has a disorder that may be genetically transmitted.The parents would like to have genetic testing performed,but the child refuses,saying,"I don't want to get stuck with a needle." What,if anything,is the ethical solution to this problem?

A)Have the testing done because the parents have requested it and the child is so young.
B)Do not perform the test because the child refuses.
C)Wait until the child is 8 years old and attempt to do the test at that time.
D)There is no clear answer to this ethical question.
سؤال
A couple is aware that a genetic condition frequently occurs in their families.They wish to have children without this condition,but do not want to know if they themselves have the gene for this late-developing illness.What are this couple's options for in vitro fertilization?

A)An embryo that does not have the genotype could be implanted.
B)The couple could request that they not be told if any of the embryos not implanted had the genotype of concern.
C)They could have multiple embryos placed during in vitro fertilization and hope that the one without the specific genotype is strongest and therefore implants.
D)They could have in vitro fertilization with donor eggs and sperm without the genotype.
E)No options exist for this situation with today's technology.
سؤال
A client's genetic testing reveals that he is a carrier for a disease.Which individuals would have the greatest personal health interest in this fact?

A)The client's father
B)The client's mother
C)The client's siblings
D)The client's wife
E)The client's children
سؤال
A father does not want to give consent for genetic testing for his newborn.Which statement by the father would be difficult for the nurse to dispute?

A)"I'll take care of him no matter what happens."
B)"The chances of his having a genetic problem are minuscule."
C)"These genetic diseases are not contagious,so it's not as if he could give one to someone else."
D)"By the time he gets old enough to have kids they will have figured out how to fix all these diseases."
سؤال
Routine newborn screening reveals that an infant has a genetic defect.In which situation does a potential legal issue arise?

A)The mother says,"I didn't give my permission for any genetic testing."
B)The father says,"I think my uncle had a genetic problem."
C)The mother says,"Would you write down exactly which test my baby did not pass?"
D)The father says,"Can I hold my baby now?"
سؤال
Which client statements does the nurse recognize as common concerns about genetic testing?

A)"I am afraid the needle stick will hurt my baby."
B)"I am afraid that I will not be able to get health insurance for my baby if there is a genetic problem."
C)"I am afraid my health insurer will make the rest of the family get tested if something shows up on the baby's test."
D)"I don't think I could stand it if I knew something was wrong with my baby."
E)"If we find out something is wrong,we won't be able to afford treatment."
سؤال
When providing care for clients who must make complex genetic decisions,what is the nurse's most important action?

A)Do not compromise personal ethics.
B)Obtain informed consent for all procedures.
C)Provide personalized and nonjudgmental care.
D)Assure that the clients are provided with the most current information to make decisions.
سؤال
Which person should obtain the client's signature on the informed consent document?

A)The clinic's business office manager
B)The registered nurse who manages intake and dismissal for the clinic
C)The technician who draws the client's blood sample
D)The health care provider who assessed the client's understanding of the testing
سؤال
A client's genetic testing reveals she is a carrier for a serious illness.Which statement indicates that an ethical dilemma is arising?

A)"I would like to have my young children tested."
B)"I really don't care if my sister develops this disease."
C)"I wonder if this is the same disease that killed my grandfather."
D)"Could this condition be the reason I miscarried two babies before my son was born?"
سؤال
A hospital has implemented a policy whereby parental consent is required before a PKU test is drawn.The laboratory technician says,"I don't see why we need a special consent for a PKU.It is a blood test just like a potassium level." How should the nurse respond?

A)"I don't understand either,but we should follow the rules."
B)"Isn't a PKU more expensive to run than simple tests like potassium levels?"
C)"PKU is a genetic test,which is different from a simple electrolyte level."
D)"Before long we will have to get consent for each test we draw."
سؤال
A nurse has a very strong personal belief that elective abortion is wrong.He is providing care to a client whose fetus has been diagnosed with a serious genetic anomaly and who is considering terminating the pregnancy.What should the nurse do?

A)Help the client see that this is the wrong choice.
B)Continue to care for the client as if there is no conflict of belief systems.
C)Ask the nurse manager for an alternate client assignment.
D)Tell the client that he cannot be a part of taking a life,so he has asked for a transfer.
سؤال
A client is aware that she has a genetic condition that might be inherited by future children.She and her husband want children and ask the nurse what options are available.How should the nurse respond?

A)"There are no options for you other than to take your chances."
B)"You could use a donor egg fertilized with your husband's sperm to get pregnant."
C)"You are young,so you might wait a few years to see if a cure for this disease is discovered."
D)"You might consider adopting a child."
E)"You should just get accustomed to the fact that you are never going to be parents."
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ملء الشاشة (f)
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Deck 9: Ethical, Legal, Social Implications of the Human Genome Project
1
A parent says,"I read that some states keep the blood sample from newborn screening and use it for other studies.Is this correct?" How should the nurse respond?

A)"That is no longer the case."
B)"I can't believe that would occur."
C)"That has happened in some states."
D)"Why would you find that disturbing?"
"That has happened in some states."
2
A client is aware that her pregnancy is complicated because the fetus has genetic abnormalities.The nurse would avoid which statement when discussing preparation for the baby's birth?

A)"You may wish to consider delivering your baby in a high-risk perinatal unit."
B)"Babies have been born for millions of years and we will get yours here safely,too."
C)"Let's talk about your plans for parenting your baby."
D)"Are you prepared for your baby to be transferred to a higher-level facility if necessary?"
"Babies have been born for millions of years and we will get yours here safely,too."
3
Before obtaining a client's signature on an informed consent form,the nurse would evaluate the client's level of understanding about which information?

A)The projected time it will take to receive testing results
B)The risks associated with having the testing performed
C)The type of test or procedure being done
D)The risks associated with not having the test done
E)The estimated cost of the procedure
The risks associated with having the testing performed
The type of test or procedure being done
The risks associated with not having the test done
4
A 5-year-old has a disorder that may be genetically transmitted.The parents would like to have genetic testing performed,but the child refuses,saying,"I don't want to get stuck with a needle." What,if anything,is the ethical solution to this problem?

A)Have the testing done because the parents have requested it and the child is so young.
B)Do not perform the test because the child refuses.
C)Wait until the child is 8 years old and attempt to do the test at that time.
D)There is no clear answer to this ethical question.
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5
A couple is aware that a genetic condition frequently occurs in their families.They wish to have children without this condition,but do not want to know if they themselves have the gene for this late-developing illness.What are this couple's options for in vitro fertilization?

A)An embryo that does not have the genotype could be implanted.
B)The couple could request that they not be told if any of the embryos not implanted had the genotype of concern.
C)They could have multiple embryos placed during in vitro fertilization and hope that the one without the specific genotype is strongest and therefore implants.
D)They could have in vitro fertilization with donor eggs and sperm without the genotype.
E)No options exist for this situation with today's technology.
فتح الحزمة
افتح القفل للوصول البطاقات البالغ عددها 15 في هذه المجموعة.
فتح الحزمة
k this deck
6
A client's genetic testing reveals that he is a carrier for a disease.Which individuals would have the greatest personal health interest in this fact?

A)The client's father
B)The client's mother
C)The client's siblings
D)The client's wife
E)The client's children
فتح الحزمة
افتح القفل للوصول البطاقات البالغ عددها 15 في هذه المجموعة.
فتح الحزمة
k this deck
7
A father does not want to give consent for genetic testing for his newborn.Which statement by the father would be difficult for the nurse to dispute?

A)"I'll take care of him no matter what happens."
B)"The chances of his having a genetic problem are minuscule."
C)"These genetic diseases are not contagious,so it's not as if he could give one to someone else."
D)"By the time he gets old enough to have kids they will have figured out how to fix all these diseases."
فتح الحزمة
افتح القفل للوصول البطاقات البالغ عددها 15 في هذه المجموعة.
فتح الحزمة
k this deck
8
Routine newborn screening reveals that an infant has a genetic defect.In which situation does a potential legal issue arise?

A)The mother says,"I didn't give my permission for any genetic testing."
B)The father says,"I think my uncle had a genetic problem."
C)The mother says,"Would you write down exactly which test my baby did not pass?"
D)The father says,"Can I hold my baby now?"
فتح الحزمة
افتح القفل للوصول البطاقات البالغ عددها 15 في هذه المجموعة.
فتح الحزمة
k this deck
9
Which client statements does the nurse recognize as common concerns about genetic testing?

A)"I am afraid the needle stick will hurt my baby."
B)"I am afraid that I will not be able to get health insurance for my baby if there is a genetic problem."
C)"I am afraid my health insurer will make the rest of the family get tested if something shows up on the baby's test."
D)"I don't think I could stand it if I knew something was wrong with my baby."
E)"If we find out something is wrong,we won't be able to afford treatment."
فتح الحزمة
افتح القفل للوصول البطاقات البالغ عددها 15 في هذه المجموعة.
فتح الحزمة
k this deck
10
When providing care for clients who must make complex genetic decisions,what is the nurse's most important action?

A)Do not compromise personal ethics.
B)Obtain informed consent for all procedures.
C)Provide personalized and nonjudgmental care.
D)Assure that the clients are provided with the most current information to make decisions.
فتح الحزمة
افتح القفل للوصول البطاقات البالغ عددها 15 في هذه المجموعة.
فتح الحزمة
k this deck
11
Which person should obtain the client's signature on the informed consent document?

A)The clinic's business office manager
B)The registered nurse who manages intake and dismissal for the clinic
C)The technician who draws the client's blood sample
D)The health care provider who assessed the client's understanding of the testing
فتح الحزمة
افتح القفل للوصول البطاقات البالغ عددها 15 في هذه المجموعة.
فتح الحزمة
k this deck
12
A client's genetic testing reveals she is a carrier for a serious illness.Which statement indicates that an ethical dilemma is arising?

A)"I would like to have my young children tested."
B)"I really don't care if my sister develops this disease."
C)"I wonder if this is the same disease that killed my grandfather."
D)"Could this condition be the reason I miscarried two babies before my son was born?"
فتح الحزمة
افتح القفل للوصول البطاقات البالغ عددها 15 في هذه المجموعة.
فتح الحزمة
k this deck
13
A hospital has implemented a policy whereby parental consent is required before a PKU test is drawn.The laboratory technician says,"I don't see why we need a special consent for a PKU.It is a blood test just like a potassium level." How should the nurse respond?

A)"I don't understand either,but we should follow the rules."
B)"Isn't a PKU more expensive to run than simple tests like potassium levels?"
C)"PKU is a genetic test,which is different from a simple electrolyte level."
D)"Before long we will have to get consent for each test we draw."
فتح الحزمة
افتح القفل للوصول البطاقات البالغ عددها 15 في هذه المجموعة.
فتح الحزمة
k this deck
14
A nurse has a very strong personal belief that elective abortion is wrong.He is providing care to a client whose fetus has been diagnosed with a serious genetic anomaly and who is considering terminating the pregnancy.What should the nurse do?

A)Help the client see that this is the wrong choice.
B)Continue to care for the client as if there is no conflict of belief systems.
C)Ask the nurse manager for an alternate client assignment.
D)Tell the client that he cannot be a part of taking a life,so he has asked for a transfer.
فتح الحزمة
افتح القفل للوصول البطاقات البالغ عددها 15 في هذه المجموعة.
فتح الحزمة
k this deck
15
A client is aware that she has a genetic condition that might be inherited by future children.She and her husband want children and ask the nurse what options are available.How should the nurse respond?

A)"There are no options for you other than to take your chances."
B)"You could use a donor egg fertilized with your husband's sperm to get pregnant."
C)"You are young,so you might wait a few years to see if a cure for this disease is discovered."
D)"You might consider adopting a child."
E)"You should just get accustomed to the fact that you are never going to be parents."
فتح الحزمة
افتح القفل للوصول البطاقات البالغ عددها 15 في هذه المجموعة.
فتح الحزمة
k this deck
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فتح الحزمة
افتح القفل للوصول البطاقات البالغ عددها 15 في هذه المجموعة.