A grandmother who has recently gained legal custody of her eleven-year-old grandson with Duchenne muscular dystrophy presents to your pediatric office. She admits that because she does not have a computer at home, she is unable to research the condition and is not familiar with the disease process. Today she requests information on the basic management of this condition and questions how many years she has left with her grandson. You explain to her that while there are exceptions, the median age of survival is generally around:

Question

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Patients with Duchenne muscular dystrophy are often confined to wheelchair by about age 12 years and die in their late teens or twenties from respiratory insufficiency or cardiomyopathy; only a few DMD patients survive beyond the third decade.

A Grandmother Who Has Recently Gained Legal Custody of Her