A newborn diagnosed with trisomy 18 (Edwards syndrome) is on ventilator support. The client's parents have repeatedly asked when their child will be able to breathe without the ventilator. Which action by the nurse is appropriate?

Question

A newborn diagnosed with trisomy 18 (Edwards syndrome) is on ventilator support.  The client's parents have repeatedly asked when their child will be able to breathe without the ventilator.  Which action by the nurse is appropriate?

Quizplus · Accepted Answer

Trisomy 18 (Edwards syndrome) is a life-threatening chromosomal abnormality that affects multiple organ systems. Many fetuses affected by this condition die in utero. Of the newborns that survive birth, half will die in the first week of life and most do not make it to the first birthday. Before withdrawal of ventilator support, it is appropriate for the nurse to request a collaborative meeting between the health care providers (HCPs) and the palliative care team to help the parents understand their child's condition as well as make decisions about interventions and the potential need for end-of-life care (Option A). (Option B) The nurse should not notify parents of genetic test results; this is the responsibility of the HCP. Information regarding the newborn's condition may be provided after the HCP notifies the parents of test results. (Option C) There is no cure for a newborn with trisomy 18 because it is a chromosomal abnormality. (Option D) The nurse should be sensitive toward the parents and provide accurate information. Telling the parents that their newborn might live long enough to go home is inappropriate because it gives them false hope, as this possibility occurs in only a small number of newborns with trisomy 18. Educational objective: Trisomy 18 (Edwards syndrome) is a life-threatening chromosomal abnormality. Many of those affected will die in the first week of life and most do not make it to the first birthday. The nurse should request a collaborative meeting between the health care providers and the palliative care team to help the parents understand their infant's condition and make decisions.

A Newborn Diagnosed with Trisomy 18 (Edwards Syndrome) Is on Ventilator